An Investigation into the Cognitive Deficits Associated with Chronic Fatigue Syndrome
For anyone interested enough to plough through this research report, it goes some way to explaining why I'm unable to work, even though I look ok:
http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=19452031#top
Sunday, May 24, 2009
Tuesday, May 19, 2009
Just Four Quid!
Once in a while someone asks "when are they going to find a cure for ME?!" - well, the cure won't be found without bio-medical research, and the research won't get done without funding. So there's a big campaign going on in the UK right now to raise funds for research. Details about how to make a donation can be found at: http://justfourquid.com/
The idea is that if each person in the UK estimated to have ME (a quarter of a million people) were to give four pounds towards research, then a million pounds would be raised. If you know someone with a UK bank account, or you have friends in the UK who might consider donating four quid towards research, then please send this message on to them, and ask them to keep sending it on to others! All we need is for 250,000 people to give four quid each!
Once in a while someone asks "when are they going to find a cure for ME?!" - well, the cure won't be found without bio-medical research, and the research won't get done without funding. So there's a big campaign going on in the UK right now to raise funds for research. Details about how to make a donation can be found at: http://justfourquid.com/
The idea is that if each person in the UK estimated to have ME (a quarter of a million people) were to give four pounds towards research, then a million pounds would be raised. If you know someone with a UK bank account, or you have friends in the UK who might consider donating four quid towards research, then please send this message on to them, and ask them to keep sending it on to others! All we need is for 250,000 people to give four quid each!
Saturday, May 02, 2009
Swine Flu - the Flu Pandemic
Let's get some numbers into perspective. Number of deaths from swine flu to date: 101 (one hundred and one). Number of deaths from road accidents annually in the USA: 50,000 (fifty thousand). Number of people diagnosed with swine flu in the UK at present: 2 (two). Number of people with MS in the UK: 85,000 (eighty-five thousand). Amount of money spent on biomedical research for MS in the UK: a lot, because they seem to keep coming up with more information and potential treatments quite often. Number of people estimated to suffer from ME in the UK: 250,000 (two hundred and fifty thousand) - conservative estimate, 25% of whom are severely affected, i.e. totally bed-bound. Approximate cost to the UK economy of people ill with ME: £3,500,000,000 (3.5 billion pounds, parliamentary data). Amount spent on biomedical research for ME in the UK: £0 (zero). Number of doctors in the UK who know the difference between ME and CFS: 2 (two) - well, that's the impression I get, but I may be exaggerating!
Would someone please tell me what's wrong with this picture?
May is ME Awareness Month! For more information on issues surrounding funding biomedical research into ME please see the Invest in ME website: http://www.investinme.org/index.html
Let's get some numbers into perspective. Number of deaths from swine flu to date: 101 (one hundred and one). Number of deaths from road accidents annually in the USA: 50,000 (fifty thousand). Number of people diagnosed with swine flu in the UK at present: 2 (two). Number of people with MS in the UK: 85,000 (eighty-five thousand). Amount of money spent on biomedical research for MS in the UK: a lot, because they seem to keep coming up with more information and potential treatments quite often. Number of people estimated to suffer from ME in the UK: 250,000 (two hundred and fifty thousand) - conservative estimate, 25% of whom are severely affected, i.e. totally bed-bound. Approximate cost to the UK economy of people ill with ME: £3,500,000,000 (3.5 billion pounds, parliamentary data). Amount spent on biomedical research for ME in the UK: £0 (zero). Number of doctors in the UK who know the difference between ME and CFS: 2 (two) - well, that's the impression I get, but I may be exaggerating!
Would someone please tell me what's wrong with this picture?
May is ME Awareness Month! For more information on issues surrounding funding biomedical research into ME please see the Invest in ME website: http://www.investinme.org/index.html
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