tag:blogger.com,1999:blog-15890111.comments2023-10-12T19:15:21.695+11:00Nicky's Itchy Feet blogNicky Reisshttp://www.blogger.com/profile/07409857304770649251noreply@blogger.comBlogger194125tag:blogger.com,1999:blog-15890111.post-69392871607386555312021-03-03T09:52:45.098+11:002021-03-03T09:52:45.098+11:00Oh, that strange time long ago, when it seemed lik...Oh, that strange time long ago, when it seemed like just around the corner we'd be getting better! I got sick about 17 months after you did. If someone had told me I'd still be sick in 2021, I don't know if I could have faced it, but of course, we do face it, day after sweet little day. The silver lining has been connecting with other wonderful people on the same journey. Thank you for sharing this and many more pleasant adventures.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-15890111.post-36972001217321278282016-03-04T17:49:00.237+11:002016-03-04T17:49:00.237+11:00
Aloha! T from Hilo, Hawaii here.
Where are you g...<br />Aloha! T from Hilo, Hawaii here. <br />Where are you going to be? <br />Hope you keep this blog going.<br /> <br />Mahalo. 8-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-15890111.post-56459267354882550512015-08-12T08:29:17.898+10:002015-08-12T08:29:17.898+10:00Hi Nicky, good luck in Hawaii. Hope you enjoy the ...Hi Nicky, good luck in Hawaii. Hope you enjoy the warm weather too. Thanks for your comment on my photos - unfortunately I accidentally deleted it. The 'publish' button was too close to the 'delete' button on my phone and I hit the wrong one. SORRY!!!Lisa Walkerhttp://blog.acceleratedlightphotography.comnoreply@blogger.comtag:blogger.com,1999:blog-15890111.post-63920163766729306982015-07-09T19:30:54.020+10:002015-07-09T19:30:54.020+10:00That is a great interview, Nicky AND I didn't ...That is a great interview, Nicky AND I didn't realise just how "international" you are! The DAA obviously does great work. I reckon they will miss you. Good luck with the move and good wishes for your new life xx<br /><br />PS Maybe a kitty or two will be in your future? ;)Carolynhttp://cataustin.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-15890111.post-40229531662323480932015-06-05T07:31:09.871+10:002015-06-05T07:31:09.871+10:00We hope the move is stress free! I (Austin) will e...We hope the move is stress free! I (Austin) will endeavour to find the new place called Abroad and put it on my map of the world ;) xxCATachresishttps://www.blogger.com/profile/10227422179439047735noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-45281408788702852152011-10-25T03:56:45.555+11:002011-10-25T03:56:45.555+11:00oniricale (at) gmail.com
Great to hear you are do...oniricale (at) gmail.com<br /><br />Great to hear you are doing so well, very positive results and quite rapidly. <br />As sad as it is that you have to make this blog private, (it has great info/links and stories about your exp in Rwanda) I think it is wise. I blog under a pseudonym for similar reasons. All the best and look forward to hear more about your improvements....https://www.blogger.com/profile/05386391067359960974noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-37028998808450163362011-10-24T21:09:45.333+11:002011-10-24T21:09:45.333+11:00Hi Samuel,
In general I followed a lot of the adv...Hi Samuel,<br /><br />In general I followed a lot of the advice written by Jodi Basset in "ME - The Basics" (hfme.org). However the real key for me was getting correctly diagnosed with fructose intolerance via hydrogen breath testing, and following a really strict diet after that (see my post about the diet in April). I'm also being treated by Dr Donald Lewis here in Melbourne - a combination of supplements, probiotics, and antibiotics. I still have some symptoms, just nowhere near as bad or as limiting as before. I've not taken a really close look at the ICC yet - but yes, I clearly met the CCC criteria. <br /><br />Like many others, it seems obvious to me that there is no single disease involved here - I'm just incredibly lucky that diet has made such a big difference for me; I've heard that it hasn't made any difference for others.Nicky Reisshttps://www.blogger.com/profile/07409857304770649251noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-63603755991463447462011-10-24T20:58:03.347+11:002011-10-24T20:58:03.347+11:00Thanks, Susan! I always wondered why people wrote ...Thanks, Susan! I always wondered why people wrote their email address like that - guess I'm just a bit slow at learning :-0Nicky Reisshttps://www.blogger.com/profile/07409857304770649251noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-82604280048217156112011-10-24T15:23:29.127+11:002011-10-24T15:23:29.127+11:00susan (at) cinderbridge.com.
Other commenters: It...susan (at) cinderbridge.com.<br /><br />Other commenters: It's best to format your address like I did so that spambots can't pick them up and send you stuff.<br /><br />Nicky: Congratulations on recovering enough for part-time work!cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-25682219461625451262011-10-24T15:02:00.840+11:002011-10-24T15:02:00.840+11:00When you are able to, it would be great to get a s...When you are able to, it would be great to get a summary of what you did and what you think helped most.<br /><br />I see that you met CCC. Do you meet ICC also?<br /><br />Thanks for telling us how you are doing.Samuel Waleshttps://www.blogger.com/profile/11141951571229527898noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-41865954532041209402011-08-17T16:59:49.173+10:002011-08-17T16:59:49.173+10:00Thanks for visiting!Thanks for visiting!Nicky Reisshttps://www.blogger.com/profile/07409857304770649251noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-16869354982427491012011-08-17T08:48:17.313+10:002011-08-17T08:48:17.313+10:00You go girl!You go girl!Digitalessehttps://www.blogger.com/profile/03594604246460921921noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-64038015539563644752011-08-03T13:15:25.930+10:002011-08-03T13:15:25.930+10:00Hi RedLizard - thanks for your comment! Always goo...Hi RedLizard - thanks for your comment! Always good to see new readers here. I notice your interest in leopard print shoes, which reminds me of a (male) friend who used to wear an astonishing pair of real leopard skin slippers that he picked up in Sudan!Nicky Reisshttps://www.blogger.com/profile/07409857304770649251noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-62641515532307079302011-08-03T08:36:57.385+10:002011-08-03T08:36:57.385+10:00love the post.the pictures are amazing..i have a n...love the post.the pictures are amazing..i have a new obsession.taking pictures of balconies that have plants.lol i hope the homeowners don't catch me snapping away lolAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-15890111.post-46780955756975369052011-07-28T10:30:08.493+10:002011-07-28T10:30:08.493+10:00looks like u had fun!!!looks like u had fun!!!Keenahttps://www.blogger.com/profile/04872631822031248926noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-26654234379332592122011-07-15T16:41:20.886+10:002011-07-15T16:41:20.886+10:00Thank you everyone - I am so grateful to be feelin...Thank you everyone - I am so grateful to be feeling this much better.Nicky Reisshttps://www.blogger.com/profile/07409857304770649251noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-573609681445375152011-07-15T08:06:10.793+10:002011-07-15T08:06:10.793+10:00You look fabulous!You look fabulous!Patricia Panahi, Ph.Dhttps://www.blogger.com/profile/00539990578359362562noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-81728083814127418602011-07-15T01:21:39.657+10:002011-07-15T01:21:39.657+10:00I am SO, SO happy to hear that!! You look stunning...I am SO, SO happy to hear that!! You look stunning on the photo!! Is it the same Nicky who hosted me in Malta??? - hard to believe!! Keep it up!!! MichalinaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-15890111.post-76692344079326596932011-07-14T22:09:50.716+10:002011-07-14T22:09:50.716+10:00Thank you Anna! I'll be back in Malta one day....Thank you Anna! I'll be back in Malta one day... :-)Nicky Reisshttps://www.blogger.com/profile/07409857304770649251noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-49590620460485467682011-07-14T21:49:00.472+10:002011-07-14T21:49:00.472+10:00you're looking terrific!:)and energized good t...you're looking terrific!:)and energized good to see and hear!Anniehttps://www.blogger.com/profile/08827148201719823857noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-70215263264445399362011-07-14T16:11:21.889+10:002011-07-14T16:11:21.889+10:00Nice blog...since i love Gelato n so this blog!!Nice blog...since i love Gelato n so this blog!!Khadija iqbalnoreply@blogger.comtag:blogger.com,1999:blog-15890111.post-55956130119881254922011-07-14T09:12:42.959+10:002011-07-14T09:12:42.959+10:00glad that you are improvingglad that you are improvingKeenahttps://www.blogger.com/profile/04872631822031248926noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-28289928201272246612011-07-14T09:08:11.130+10:002011-07-14T09:08:11.130+10:00I was never tested for Lyme, but will ask my dr ab...I was never tested for Lyme, but will ask my dr about it. If I could get just half my energy back, I'd be happy.Keenahttps://www.blogger.com/profile/04872631822031248926noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-84555512602031217742011-07-07T19:05:32.553+10:002011-07-07T19:05:32.553+10:00I totally agree about formulaic treatment for ME, ...I totally agree about formulaic treatment for ME, Nicky. I think I told you I tested positive for Lyme Disease and was put on a/bs for a good while. I did find it helped (herxing wasn't nice though!)<br /><br />As long as folk don't get themselves confused and realise that we are all different, even within the ME spectrum, then knowing what has helped others can be a good guide. xxCATachresishttps://www.blogger.com/profile/10227422179439047735noreply@blogger.comtag:blogger.com,1999:blog-15890111.post-5262471190299198582011-07-07T18:27:37.410+10:002011-07-07T18:27:37.410+10:00Hi Caro,
Thank you for your comments! Yes - I com...Hi Caro,<br /><br />Thank you for your comments! Yes - I completely agree that diet and pacing are "damage limitation" only. Although the diet has helped me enormously I know that it's not a cure, and also that for many people with ME diet makes little difference. What goes on in the UK is criminal, and I'm feeling so lucky to be here in Melbourne where I can get treatment. I hope that by spreading information the NHS will eventually be shamed into providing proper testing and treatment. <br /><br />I've been prescribed a regime of antibiotics, probiotics, and vitamins/supplements based on my test results. I'll share more of this information soon. But all treatment is individual - I don't think there's any one formula that fits everyone for this disease. This is why proper testing is so important.Nicky Reisshttps://www.blogger.com/profile/07409857304770649251noreply@blogger.com